Today, Larry doesn't have appointments until the afternoon, one with his case management doctor and a nutritionist. This is wonderful because that gives us the morning to catch up with more mundane tasks.

Yesterday, Larry started on his first dose of one of the oral medications. He will be increasing it some each day until next week when he'll be at the dosage he'll be taking while at home.

We had a rather eye opening meeting with the Financial Counselor. She (a very warm and helpful woman) informed us that the infusions Larry will be receiving every 3 weeks for 8 months plus this once a week this month cost nearly $11K a piece. We are hoping his insurance will cover all or most of this. We've paid for the first infusion but know that we'll soon be out of funds. If the insurance company comes through what we paid will be put as a credit on his account. We will also need to have a doctor in Minnesota who will be willing to work with the clinic here to continue his treatment in coordination with his case management physician in Houston. This seems daunting but as our guest pastor preached last Sunday we need to ask God for big things. PLEASE JOIN US IN PRAYER ABOUT THIS. 

I've been wondering why the clinic here keeps asking for the films of his previous scans. Now I know why.

Yesterday, we were done around 1 pm at the clinic but then we spent about an hour or so in our car calling  RMC and Lakeview Clinic and MN Oncology because the paperwork I'd spent days on prior to our trip down here had not actually accomplished what we thought. We had been given the wrong forms from a clinic in MN as to how to send the reports, labs, etc.

When we finally got those in process (we hope) we went to Costco, ate lunch at the townhouse and then went to find a Trader Joe's.

We've been sleeping well. It has been challenging to eat on a timely basis with the many technical hiccups we've recently had to deal with as well just the newness of the situation. Hopefully we will get into a bit of a routine before we leave here.

The sun is shining nicely and it's time to leave for his appointments. Please leave a comment or a hello to let me know I'm not typing into cyberspace to no avail. Catch you later.

I'm back and the 2 main challenges remain:  coverage for 2 of the 3 medications and finding that oncologist or doctor who would help with the administering of the infusion. Larry will start on the infusion on Monday. Please pray he does well on it then his doctor can make a case to the insurance company if they deny coverage and to a MN doctor.We are supposed to get an automated voice message from the insurance company tomorrow with their answer for one of the medications. There are a couple other options but those would take a matter of weeks to be sorted out. We would prefer to be home before Christmas.

We met with a nutritionist today as well. We learned some good things, some of which we already knew and have started to implement. We also received important information about what Larry shouldn't eat while on medication.


  1. Praying for you both Larry and Linda!! Your graphic at the beginning of this post reminded me of one of my favorite scriptures, its from Psalm 77:19-20 (but all of Psalm 77 is worth reading for encouragement!!)
    "Your road led through the sea,
    your pathway through the mighty waters—
    a pathway no one knew was there!
    20 You led your people along that road like a flock of sheep,
    with Moses and Aaron as their shepherds.

    Praying and trusting that God is leading you on this journey even when it is difficult to see the road, God knows the path even when we don't know its there. Thank you for keeping us updated through this blog!!

  2. Praying for those big things :-) Love you guys!

  3. Thanks so much for the update, Linda. I pray for you and Larry often, and I love knowing how I can be praying specifically!

    The Lord keeps bringing me to Psalm 121 this week:

    I lift up my eyes to the mountains—
    where does my help come from?
    2 My help comes from the Lord,
    the Maker of heaven and earth.
    3 He will not let your foot slip—
    he who watches over you will not slumber;
    4 indeed, he who watches over Israel
    will neither slumber nor sleep.
    5 The Lord watches over you—
    the Lord is your shade at your right hand;
    6 the sun will not harm you by day,
    nor the moon by night.
    7 The Lord will keep you from all harm—
    he will watch over your life;
    8 the Lord will watch over your coming and going
    both now and forevermore.

    Oh what a comfort it is to know that the One who watches over us will neither slumber nor sleep! Day and night, He watches over our life, and promises to not let our foot slip. May your Helper- the One who made heaven and earth- continue to reassure you of His presence and fatherly care for you and Larry. Praying for you every day!

    -Allie Maurer

  4. Praying for you both. Thanks for the updates

  5. Praying for you both now, that the peace of God which transcends understanding would be ever present with you. -Bert

  6. Praying for you! Jesus said to pray "on earth as it is in heaven". So that is how I'm praying!!

  7. Praying for you often. God, please make the insurance company give a favorable response so that the finances won't be a stressor at this time. You can do all things. Magnify yourself in this and in Larry's body by healing it. You are good. Your compassion never fails. Your mercies are new every morning. Blow our minds with your amazing provision. We love you, Father! Amen

    Love you guys,